As many of you may already know, our family’s life took a sudden turn this year. Our 3 year old daughter, Tallia, went from an extremely happy and active child, to having severe leg pain, to wearing a leg brace and having to drag her left leg when she walked. It all started in October when we took Talli to her primary care physician because she was complaining of her left leg hurting. Her symptoms led the doctor to believe that she had toxic synovitis, a cold in her hip, which is very common in a kid her age with the symptoms she was experiencing. Weeks went by and she did not get any better. We were then admitted to UCSF Children’s Hospital for possible Rheumatoid arthritis. After being seen by many doctors they were not convinced that’s what it was so they ordered an X-Ray and MRI to be done. The images of the X-Ray and MRI showed extra bone growth on the outside of her normal bone along with inflammation. The doctors said it could either be a bone infection that would need to be treated with antibiotics for six weeks, or a possible tumor. The next step was a scheduled open biopsy to get a better look at what was going on and to take samples of the extra bone growth and the tissue around the bone. The quick results showed no bacteria, and soon the surgical team showed up with the Oncology team to discuss the possibility of cancer. At this point our hearts dropped. After waiting a week for the final pathology report, we received a call from the head oncologist. It was an Ewing Sarcoma Tumor…that was cancerous. It is every parent’s nightmare, a situation that in your mind, could never happen to your family. But boom it did and our hearts were shattered. We thought…Why us? But then we quickly realized…why any family. We felt helpless and terrified not knowing what was next to come. Our Faith has been carrying us through but for a three year old who doesn’t understand, all the faith in the world does not take the sadness we have go away watching her so confused and in pain.
The doctors are optimistic of the situation but have also warned us of the tragic possibilities. Ewing Sarcoma is a VERY RARE and a VERY AGGRESSIVE cancer. It can metastasize to vital organs. There is 63% overall survivability rate, but her case is expected to be higher because they believe they have caught it early. Furthermore, it is even more rare that a child of Talli’s age is diagnosed with this type of tumor. The doctors have told us that she may be 1 out of 8 children of her age to be diagnosed with Ewing Sarcoma in the entire nation. Most cases are in adolescents ages 10-20.
We have set up this page for those of you who wish to follow Talli’s long journey. You can visit this website if you would like to stay connected with our journey.
We would like to Thank all of you for your thoughts and prayers, and all of your love and support. We are all praying Talli makes a full recovery and gets back to playing with her sisters soon. It is going to be a long road ahead but we know God will help carry us through. The strength that He has given us and the Love that He has shown to us through our Family, Friends and people we don’t even know brings such Joy to our broken hearts and it is really helping us to try and have a positive outlook on all of this. And as Jacy says “Day by Day!”
God Bless you all,
Jon & Jacy Davis